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James Lind Alliance Rare Inherited Anaemias Priority Setting Partnership

Carol Anderson from Kent and Canterbury is representing ANSA as part of the James Lind Alliance Rare Inherited Anaemias Priority Setting Partnership. The partnership brings together patients, carers and health and social care professionals to identify important unknowns in the diagnosis, treatment, management and care delivery for people of all ages with rare inherited anaemias and the impact on their families.  The survey on the following  link has been designed to gather questions from people with rare inherited anaemias, their carers and also healthcare professionals. Can we ask that you please take a few minutes to complete the survey by clicking on the link below. The group are keen to publicise the final results and also in presenting the results to funding bodies to be considered for research funding.

http://www.ouh.nhs.uk/research/patients/priority-setting-partnerships/rare-inherited-anaemias/default.aspx

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